The truth is an unusually touchy subject with most people. You ask someone if they are fine but are you prepared for any other answer then a simple yes? Truth is no one is just fine. Everyone has a little something going on in their lives that they can either share or choose to keep to themselves. This was my status on Facebook today:
"I want to take a moment to thank God for all he has blessed my family and I with. He has taught me patience and love and forgiveness ... Ias well as so much more. God is good and sometimes we get so caught up in what we want that we forget to be thankful for all we have."
Today I sat down for a few moments with our youngest daughter and she says a ton in simply a few sentences. She expressed the want for she and her dad to spend more quality time together. This is something he and I may have to discuss and make plans for. Whether he take time to play the Wii with her or even take time with just the two of them to go out for sundays or something. Just some daddy daughter time for them. Sometimes I feel like she has been a little cheated, actually both of our girls have. How so? You see, she was 7 months old when Kody was diagnosed and our whole world changed. She puts it best when she says that everything we have done has revolved around Kody. This includes where we have lived, trips we have taken, and everything he requires at home as far as assistance. With that being said though, she has a very close relationship with him because she realizes and understands her time is limited with him because of the prognosis that goes along with his illness. They both miss having their big sister at home though they spent a lot of the time butting heads. I think that is natural though and admittingly I miss her being home but I am so proud of her accomplishments and that she is holding her own.
Life has thrown twists and turns that God has done to show us how strong we truly are. Would I say the twist of having a ill brother has been beneficial to our girls? No, nor would I call it a blessing to have a child .. young man with FA. We hate the FA but love Kody. Our girls would rather have had a brother who would grow up one day to marry a good woman and give them nieces and nephews and be that goofy uncle to their children one day.
Rikki in some ways has been jaded by life and things that have occurred and continue to occur. When her acting coach walked her through an exercise I could see a pain in her eyes that no girl should know, especially at her age. We have to come together as a family and work through things that sometimes make us feel so lost. Rikki is growing up to be a beautiful young lady and is quite intelligent. I think more than she realizes or appreciates about herself. She has an amazing heart and connects with everyone she meets on a deep level. She empathizes with what people are going through and definitely has picked up my empath traits which can been a little difficult to handle sometimes. RB walked her through an exercise that helps her as an actress but will help her as an empath to put up a bubble of protection from outside influences.